Saturday, July 24, 2010

Another change in plans...and disappointment

So we're not finished with our journey yet. This past week has been another challenge, and another chance for learning patience and self-control. I flew down to Vancouver for a scheduled surgery to repair the damage to my stomach that was caused by the accident. It was scheduled for Friday, and we spent the better part of Tuesday (my mom and I) in Vancouver in meetings with various clinics and anesthetists to make sure that everything would go according to plan. My last surgery for my eyes was canceled two days before it was supposed to happen due to oversights regarding my requirements for the stuff that I need to be given to make sure my blood clots - it's the same product that my boys give themselves for their hemophilia. All the tests and procedures that I have had done have shown me that I am essentially a mild hemophiliac, and need to be treated as such in operative situations. So this time they were taking no chances, and I have finally made the connections with the hemophilia clinic at St. Paul's Hospital in Vancouver, also the same place where Jason and Aaron come for their yearly consults. They have a great support program for carriers, and it would have made everything over the past 18 months a whole lot easier if I had previously had a file with them. For whatever reason, it was never done. We had testing done way back when the boys were first diagnosed with hemophilia, and I was aware of my carrier status and that I required treatment whenever operated on, but it was always done at home in PG where they knew me, so I was never involved in trying to make the arrangements for factor replacement and treatment.

Now that this is all under control, one of the VERY good things that has come out of all of this is that the clinic at St Paul's is willing and able to provide treatment for me in surgical procedures done at UBC, where my ophthalmologist operates out of. My eye surgery was canceled due to the fact that there was no hematology department at the UBC hospital to provide coverage for me during surgery. So the doctor needed to get permission to operate out of VGH instead, and then wait for some other doctor to give up some OR time for him to do my surgery! Needless to say, I had no idea when that was going to happen! Now we can schedule the eye surgery to be done as planned at UBC, and the St. Paul's clinic will take care of all the arrangements for my blood work and treatment! Praise the Lord for that! I'm just waiting now to get a date for that one!

So back to my surgery which was scheduled for this past Friday. I went into the clinic (a private one, very lovely and professional!) and everything was going smoothly - other than the fact that it took forever for them to find a good vein for my intravenous! Ouch! The nurse was there from the hemophilia clinic, and supervised the administration of the blood product, sedatives were given, and I was taken into the OR. All was going very smoothly, and as I went under, I felt no fear, only excitement at having this all done with and the outcome of a flat stomach! Well, when I woke up I realized something was wrong, because I could see the clock, and it was only an hour later. The surgery was supposed to have been 3 hours, so I knew something didn't go right. That and I had no pain in my stomach. They told me right away that the surgery was aborted after 2 anesthetists tried 6 different ways to get a breathing tube down my throat. They found that because of my injuries, my windpipe has a very sharp bend to it, and they were simply not able to get the tube past it. In a hospital, they have other equipment to do it differently, but they didn't have it in the clinic. So I was sent home after a few hours with many apologies, a very sore throat, and the personal phone numbers of several specialists just in case anything went wrong!

All in all, I believe (as I have stated many times before) that everything has happened for a very good reason, and there was also a good reason for this. Had this been a crisis situation, the anesthetist told me that I would not have survived. I am now to have the information "failed intubation" inscribed into the MedicAlert that I wear. That would avert a similar crisis in the future. All that being said and done, the surgery is to be rescheduled for after Jason and Dani's wedding sometime in late August or early September, and will be done in the UBC hospital. Who knows, maybe I can get the eye surgery done at the same time?!!!

This is a lot of information, and I hope that it's not too much, but it needed explaining, so there it is. I am struggling a little to not be disappointed that I won't look as fantastic as I had hoped for the wedding, but that's a very selfish and conceited, prideful thought. So it's just as well that it didn't happen! It's good for me to put things into perspective again. It's just so hard when my vanity gets in the way!

Anyway, thanks for your thoughts and prayers, and I trust that you will continue to go with all of us on our journey, which as I said in the beginning, is obviously not over yet! In the meantime I had several opportunities to be gracious, thankful and give witness and testimony to God's grace and glory through the telling of my story to several nurses and doctors. His ways are way bigger than ours, and who knows what the outcome of that will be!

So I pray for continued faithfulness, obedience, patience, and a good dose of humility!! Have a blessed day! And thanks again for taking the time to read all this!!
Judy

5 comments:

  1. I have so many comments to make that I would find very funny, but I will refrain since many may read and not "get" it! (I'm pretty sure you'd get them though!) Suffice to say that you will be wearing more inscribed blingage then you'd ever imagined! OK and just keep in mind that you look a lot better than you could have had things turned out differently. Personally, I think you look great! Kelly

    ReplyDelete
  2. Also wenn ich alles richtig verstanden habe, konnten sie die OP nicht machen weil sie dich nicht intubieren konnten und wenn es ein Notfall gewesen wäre wärst du tod. Welch ein Quatsch!!!! Im notfall gibt es andere "Mittel" jemanden zu beatmen als durch den Tubus. Aber das nur am Rande.
    Ich bin froh, dass es dir soweit gut geht und bin auch überzeugt davon, dass du bei der Hochzeit auch so einfach Super aussehen wirst. Ich bin Stolz auf dich, dass du das alles so klasse machst. Und ich bin sicher, dass es alles gut wird, auch wenn du es manchmal nicht gleich siehst. Du hast ja jemanden, der auf dich schaut und alles so laufen läßt, wie es soll. Kopf hoch! Du hast die Kraft.
    Love you Ariane

    ReplyDelete
  3. Judy, keep your chin up and your soul towards our dear Lord, as you said there are reasons for whatever..... just think a reason to have to purchase 2 different mother of the groom dresses for the wedding, LOL, Love you, Tammie

    ReplyDelete
  4. Judy, you truly are an inspiration! you always seem to find the postive even when things are not going according " to schedule" thanks for your honesty in every posting, so that the people who follow this blog can see what true strenght is.
    Alice Garcia

    ReplyDelete